Startups
Cystic Fibrosis Foundation
Bethesda, Maryland, United States
Bethesda, Maryland nonprofit funding cystic fibrosis research, drug development, specialized care and patient advocacy. Founded in 1955, it uses venture philanthropy through its CF Foundation Mission Ventures investment arm to fund biotechnology companies across development stages. Its focus includes genetic medicines, lung-targeted nucleic acid delivery, infection treatments, diagnostics and other cystic fibrosis complications. Funding may involve equity, research agreements, milestone payments or royalties; financial returns support the Foundation’s mission. Its current published portfolio includes 24 companies, including Gensaic, Nanite, ViaNautis, Prime Medicine, ReCode Therapeutics and AI-based delivery developer Ride Therapeutics. Michael P. Boyle is president and CEO and KC Bryan White chairs the board. The Foundation’s research budgets and philanthropic fundraising campaigns are distinct from externally raised venture funds.
Founded 1955
Team
Adela SkenderasiChief Investment Officer |
Albert FaroSenior Vice President and Chief Medical Officer |
Carole B. GriegoTrustee |
Catherine C. McLoudNonvoting Chair Emeritus |
D. Paul FlessnerTrustee |
David A. MountTreasurer |
Dodzie SogahTrustee |
Dominic J. CarusoTrustee |
Eleana SeekSenior Vice President and Chief Audit and Risk Officer |
Elise EberweinTrustee |
Eric C. SchneiderTrustee |
Eric J. SorscherNonvoting Medical Advisory Council Chair |
Eric R. OlsonVice Chair of the Board of Trustees |
 Heather CulpSenior Vice President and Chief Development Officer |
Irena BarisicExecutive Vice President and Chief Operating and Financial Officer |
James (Jamie) R. Butler, IINonvoting Advisor |
Jennifer L. TaylorNonvoting CF Adult Care Center Representative |
Jessica H. BoydTrustee |
John S. WeinbergExecutive Vice Chair of the Board of Trustees |
JP ClancySenior Vice President of Clinical Research |
Kate O'DonnellNational Volunteer Leadership Council Chair |
Kathryn BrownSenior Vice President and Chief Communications and Marketing Officer |
KC Bryan WhiteChair of the Board of Trustees |
Louis A. DeFalcoVice Chair of the Board of Trustees |
Marin GoingsSenior Vice President and Chief of Strategy |
Mary B. DwightSenior Vice President and Chief Policy and Advocacy Officer |
Michael CavadelSenior Vice President and Chief Legal Officer |
 Michael P. BoylePresident and Chief Executive Officer · Trustee |
Molly RileySenior Vice President of Field Management |
Paul A. MotenkoNonvoting Advisor |
Peter J. Mogayzel Jr.Nonvoting Pediatric CF Care Center Representative |
Robert H. NiehausVice Chair of the Board of Trustees |
Steven RoweExecutive Vice President and Chief Scientific Officer |
Steven ShakTrustee |
Sue SullivanVice President of Community Partnerships |
Teresa L. ElderVice Chair of the Board of Trustees |
Timothy A. Waire, Jr.Senior Vice President and Chief Information Officer |
Yvonne MassenburgSenior Vice President and Chief People Officer |
Investments
| $—2026-09-10 |  Ride Therapeutics | Cystic Fibrosis Foundation |
| $—2026-08-06 |  ReCode Therapeutics | Cystic Fibrosis Foundation |
| $3M2025-09-29 | ReCode Therapeutics | Cystic Fibrosis Foundation |
| $—2025-07-16 |  Prime Medicine | Cystic Fibrosis Foundation |
| $—2024-11-18 | ReCode Therapeutics | Cystic Fibrosis Foundation |
| $—2024-01-25 | Prime Medicine | Cystic Fibrosis Foundation |
| $—2023-01-10 | ReCode Therapeutics | Cystic Fibrosis Foundation |
| $—2023-01-09 |  Gensaic | Cystic Fibrosis Foundation |
| $3M2021-12-21 |  Pulmocide | Cystic Fibrosis Foundation |
| $—Unknown date |  ViaNautis | Cystic Fibrosis Foundation |
| $—Unknown date | Owlstone Medical | Cystic Fibrosis Foundation |
| $—Unknown date | Nanite | Cystic Fibrosis Foundation |