People

Susan L-J Dickinson
Susan L-J Dickinson is AFTD’s former chief executive officer, leading the charity from2008 until retirement in May2026. She is a genetic counselor with an Arcadia University master’s degree and Swarthmore biology/psychology undergraduate education. Her professional work supported communication among researchers, clinicians and the public, expansion of FTD research programmes and development of support services. A stale translated staff directory identifies her former role and authentic portrait; current English staff and Summer2026 leadership sources confirm Rachel Biblow succeeded her. The historical affiliation is not represented as current leadership.
Roles
The Association for Frontotemporal Degeneration
CurrentFormer Chief Executive Officer (2008–May2026)